2nd round of doxycycline treatment almost 3 years after 1st round treatment (which didn’t work). Was told chronic lyme disease doesn’t exist. Was told not to believe the information available on the internet. I believed them and that was my biggest mistake!
Duration : 0:8:21
This is Deb’s story. She fought lyme for 25 years. As a single mom, she had to live. She has won the battle by training her immune system using IRT. More info at www.lymefree.com
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Duration : 0:7:20
I’ve been sick with Lyme Disease my entire life. In this video I share a little about how Lyme effects the brain.
Duration : 0:6:49
Update 2
Thanks to my lovely lyme disease I have had 6 brain/spine surgeries in 18 months to treat Intracranial Hypertension. I will be making a video soon to explain my condition from lyme more. It’s very rare and there are only a few reported cases of kids getting it from lyme. I got the luck of the draw! My lyme is virtually gone, and besides the IH and thyroid problems I have no other symptoms. I am off all antiobiotics. My IH is here to stay, however. I do continue to fight for the rights of both my lyme friends and IH friends (we are treated very similarly to the way lyme patients get treated. no one understands it.) I hope you are all doing well.
UPDATE:
I’ve had 2 months of IV rocephin and 2 picc lines, along with brain surgery to put a shunt from my brain to stomach to continuously drain the fluid. I’m feeling a lot better and am back to school. I’ve also tested positive for coinfections rocky mountain spotted fever and q-fever, along with cat-scratch fever, but am still awaiting a positive lyme disease test. It’s getting there. While I’m feeling better, I still have some lyme symptoms, and always will. For all those people out there with chronic lyme disease- this video is for you.
Ok, So this is unlike any video I have uploaded onto this account. This disease has been affecting me and my family for 2 years, and I need to get the word out about it. Yes, I’m sure many viewers have heard of this, and probably think it’s not very serious. Truth is, that this disease can kill. I was left undiagnosed by 10 doctors, and told by one I was making myself see double and was told to go back to school, I could concentrate because I could count back from 10. Unless you have lyme, you may not understand how hurtful that was. Lyme disease gave me a condition which causes fluid to build up in my brain, it requires spinal taps to drain the fluid, and if we had not figured out why I had pressure in my brain I may have gone blind. It’s called pseudotumor cerebri, and causes debilitating headaches. I have been on 4 different oral antibiotics and I am IV for a couple of months.
PLEASE tell people about this video. I will be posting more informative videos on lyme disease in the near future. This disease is not acknowledged by so many doctors for so many different reasons, I had a rash from lyme disease, and I had so many symptoms, yet so many doctors said “you don’t have this” and now I am at the point where I am out of school.
Duration : 0:3:55
BADA Chair Wendy Fox speaks about the risk of ticks on Yorkshire moorland this summer.
Duration : 0:3:25
Dr. Raphael Stricker talks about the controversy over chronic Lyme, the pros and cons of the existing Lyme tests, and the IDSA’s argument against long-term use of antibiotics, on April 23, 2008 as part of the Lyme Disease Expert Interview Audio Series.
http://www.lyme-disease-research-database.com/lyme_expert_interview_series.html
Duration : 0:1:27
This 2006/2007 video was produced by Starving Artist Pictures and Crosse Media for Ticked Off and Fed Up, Inc. (TOFU), a 501(c)(3) charitable organization in Gettysburg, Pennsylvania. Please check out their website: http://TickedOffandFedUp.com
For more info about Lyme, go to http://LymePa.org or http://ILADS.org, and be sure to watch the award-winning documentary “UNDER OUR SKIN,” which is in theaters now and available on DVD: http://underourskin.com
Duration : 0:8:9
Mary McDonnell is the spokesperson for the Lyme Disease Association (www.lymediseaseassociation.org). Here is her keynote address for the opening of the new Columbia University Chronic Lyme Disease Center. Also be sure to check out: www.lymediseasefilm.com “Under Our Skin: The Untold Story of Lyme Disease”
Duration : 0:9:50
I have been fighting Chronic Lyme Disease for 14 years.
Duration : 0:9:59
http://www.trusera.com/health/
Imagine waking several times each night with wracking pain. In the morning, you can barely move, let alone dress yourself. Now imagine not knowing what’s wrong with you.
That’s what Keith Schorsch went through. Ten doctor visits, many months, yet no one could tell him why. Finally, a phone call from a friend changed everything. “Get checked for Lyme disease,” she advised. Sure enough, Keith soon learned he had Lyme, a disease in which a tick bite releases bacteria that cause a serious infection throughout the body. If left untreated, it can lead to facial paralysis, extreme joint pain, and chronic fatigue. Even worse, a person might not be able to ever think straight and their heart could be permanently damaged.
In this video, Keith and his wife, Jennifer, share their harrowing story, and the good that came out of it: a changed outlook on life, a stronger relationship, and a thriving online health community, Trusera.com. The friend that called them saved Keiths life; Trusera was founded on a belief in the power of friends like this, those who have been through it. Out of a bleak outlook came an idea, Trusera, which aims to help people find and share health insights and recommendations with others who have been there, thus helping them to avoid the confusion, isolation and pain that Keith and Jennifer describe in this story.
Duration : 0:9:45